Benefit to help young MD patient get around
PRESCOTT--“Have wheels, will travel” could be the slogan for Trenten Williamson in his quest to obtain a family vehicle which would accommodate his new power-chair.
The 11-year-old with Duchene’s Muscular Dystrophy isn’t confined to the chair yet, but is expected to have to use it regularly in the near future. Members of his family, including his father, Mike, mother, Jeri, six-year-old sister, MaKenna, and three-year-old brother, Landen, said Thursday he’s been reluctant to accompany them on trips away from their Prescott home because of his condition, other than to school.
“I want to build a computer,” the fifth grader this fall at Malone Elementary School said about one of his hopes. A benefit to raise funds for the more immediate transportation goal, called “Driving for Dollars,” is to be held Saturday, Aug. 17, beginning at 2 p.m. at The Bluffs Bar and Grill in Hager City.
Williamson’s mom said his situation became even more apparent when he visited Disney World in Florida over the Memorial Day holiday. That journey—the first for him and most of the family to travel by plane—was sponsored by the Make-A-Wish Foundation. The foundation arranged for their guests to ride in a handicapped-accessible van while at the amusement park for attractions like “Give Kids the World,” which meant he “could cruise,” she said.
“It was kind of like getting him back,” said the Ellsworth native and 2002 EHS graduate.
The power-chair is a relatively recent development for her older son, she said. School officials recommended it during an Individual Education Plan (IEP) meeting for students with special needs, based on his slowing mobility. He can still walk, though slowly, and is getting heavier as he grows.
The chair was obtained this May from a medical supplier affiliated with Twin Cities-headquartered Allina, to which the family was referred by Gillette Children’s Hospital in the Cities, they said.
For more please read the August 7 print version of the Herald.