Rare disease bonds families
COTTAGE GROVE, Minn. -- Jennifer Fair said she tells her 10-year-old son that she loves him and that he is "my perfect boy."
She sees Alex, not the disease that will eventually take his life.
Most nights, Alex has trouble staying asleep. When he's having a bad night, Erik, does what most fathers will never have to do. He sleeps next to son's bed and when Alex tries to get up, Eric puts Alex's leg back into the bed and goes back to sleep.