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Erik and Jennifer Fair and their son, Alex, who is 10 years-old, on the couch in the Fair family room. Alez is soothed by touching so both his parents take turns.

Rare disease bonds families

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COTTAGE GROVE, Minn. -- Jennifer Fair said she tells her 10-year-old son that she loves him and that he is "my perfect boy."

She sees Alex, not the disease that will eventually take his life.

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Most nights, Alex has trouble staying asleep.

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Judy Spooner is the longest-serving staff writer at the South Washington County Bulletin. Spooner, who covers education and features in addition to writing a weekly column, has been with the newspaper for over 30 years.
(651) 459-7600
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